“Your son has leukemia...”
The doctor went on to explain the
disease, its progression, treatment options, possible outcomes... but
my brain was stuck on that one word, leukemia. Like a computer frozen
on a bit of bad code, my mind couldn't move past that one bit of
information. My son has leukemia.
“...The disease is fast and
aggressive. We need to be faster and more aggressive.”
Doctor Misra pulled me back into the
moment, gave me focus and purpose. Leukemia was killing my son and we
needed to kick its ass. Now!
As a father, and a guy, I needed that.
I needed to know what I could do to protect my son. I needed a target
and a plan of attack. I needed that subtle anger and determination in
her voice when she explained how leukemia was trying to kill my son,
but we were going to kill it first. She was not going to lose her
patient, and I was not going to lose my son.
Joshua's primary nurse in the hospital
was like a tiger protecting her young. Jennifer made sure Joshua had
everything he needed, and got the best possible care, if she had to
turn the hospital upside-down to do it. She had no problem getting in
the face of technicians, doctors, or administrators. Her patient came
first, period. Joshua was her's and God help anyone or anything that
got in her way. The leukemia didn't have a chance.
In those first days and weeks we were
surrounded by that kind of determination. When Joshua went into ICU
all of the doctors and nurses approached his treatment like a battle
they were determined to win. I've never experienced such passion and
dedication in my life. They set the tone – there was no time for
sadness or tears, no place for fatalism or depression – it is a war
against disease, and we are going to win.
My friends and fellow writers around
the world have eagerly joined the fight. Eden Baylee, a fellow
independent author, stepped forward to lead that online front. She
started Indies Unite for Joshua and took up the banner of raising
money for Joshua's care with enthusiasm and determination. The
“Metallica Baby” logo she designed for Indies Unite for Joshua
perfectly embodies the spirit of a young man fighting for his life.
There is no surrender, only victory.
Joshua is surrounded and empowered by
strong women determined to bring down the gates of hell if that's
what it takes to cure him. But none are stronger than his mother –
my wife of twenty-seven years. Her cool passionate resolve to carry
her son through – on her back if necessary – is boundless. Next
weekend is Mother's Day and I will be guest posting on RachelThompson's blog – Rachel In The OC – about the special bond
between mother and son and the difficulties of being the parent of a
young adult with cancer.
The Indies Unite for Joshua campaign
site is featuring a series of videos this month. Rachel's video will
air Mother's Day weekend while I invade her blog. Please, take time
to watch the videos and support the many people who have given their
time, talent, and treasure to help my son in his fight against
leukemia – and come by Rachel's blog for my special Mother's Day
post.
xoxox
max

Great post, Max. I agree with you about the doctor explaining things in black and white , life and death, kill or be killed.
ReplyDeleteCancer IS something to fight, and Joshua WILL WIN the battle. You've been amazing through all this. Hang in, hon.
xoxo
eden
Thanks, Beautiful. For all you've done and keep doing. <3
Deletexoxox
max