A little over four months ago my son Joshua was diagnosed with Acute T-Cell Lyphoblastic Leukemia. I posted here and set up a PayPal donation link for anyone who wanted to help out. Eden Baylee, a friend and fellow author from Canada, took it a step further. She proposed a fund raising campaign on Indiegogo.com. She set the goal at $10,000 and brought together a stellar group of people to offer books and services to those who donated.
I told Eden at the time, anything above the cost of Joshua's medical costs would go to pay off his college loans and further his education. $10,000 is a lot of money, right? Then the estimate came in for Joshua's initial stay in the hospital. Over $200k not including doctor's fees.
We have insurance, and decent jobs, but...
For my friends who live outside the States, our insurance in the US has a deductible -- what we pay before insurance starts paying -- and co-pays -- what we pay along with insurance for each doctor visit -- and even after the deductible is paid insurance only pays a percentage. In our case that's an 80/20 split on the hospital bill and $81 per visit to the clinic. For two months Joshua visited the clinic an average of four times a week. Then there are meds to buy...
So $10,000 is a lot of money, but cancer treatment is unbelievably expensive. Our home costs less than the initial hospital stay!
The Indies Unite for Joshua Campaign Eden started has been a huge success. The $10k goal was reached and surpassed three days ago. The campaign ends today and I am thankful beyond words to all those who donated and all those who spread the word over various social networks. Every penny of the money raised is going out now to pay Joshua's medical bills. And I am proud to say that thanks to Indies Unite for Joshua, donations here on my blog, and a couple of grants from non-profits, we have kept the bills paid to date without adding any financial burden to Joshua!
But we aren't finished. Joshua went back into the hospital yesterday to resume chemotherapy. He will be in and out of the hospital over the next few months driving the last remnants of leukemia from his body. His most recent bone marrow biopsy showed <.01% diseased cells. The same test showed 80% diseased cells at diagnosis, so he is kicking cancer butt, but any residual disease can come back and be fatal. Even after he fights his way through the next few months there will be 3 1/2 years of maintenance treatment and 5 years of monitoring. He still needs to finish his education and he still has thousands in student loans to pay.
His mother and I are determined to keep this disease from financially burdening a brilliant young man just starting out in life if it takes everything we have.
Please stand with us, and with Joshua, as he continues the battle. I'll be adding a donation link to all my profiles and web pages. Spread the word, tell your friends about Joshua, donate if you can. All those who have already helped, and continue to help, have my eternal gratitude. Beyond the financial support, you have lifted us up and showered us with love throughout the past few months. Please keep Joshua in your thoughts and prayers.
Much love,
Max

Excellent test results! So happy to hear the treatment is progressing well, and I was ecstatic when the campaign passed $10,000! Keeping you guys in my thoughts and looking forward to a day in the future when we can get together and party to celebrate Joshua kicking cancer's butt!
ReplyDeleteThanks Jen. We need a real world, in the flesh party ;)
DeleteIndies unite for Joshua was an opportunity for many wonderful people -- particularly indie authors to use social media for a good cause - to help one of its own when it really counted. In the process, so many others rallied to help from all over the world, from all walks of life. The unity for Joshua was incredible and inspiring.
ReplyDeleteI am grateful to have been a tiny cog in this big wheel to raise money and awareness for Joshua.
Cancer is an awful thing. By the grace of what we deem most sacred, it should never affect those we love, but that's not the reality. Should it happen, we can only wish for support, caring, and empathy. In this case, I am happy that many offered monetary support as well.
Please know, Max, you are much loved and you have real friends in the virtual world who truly care about Joshua, you, and your family.
eden
xoxox
Small cog... Like the one at the center of a mechanism that makes it all work! #IndiesUnite4Joshua was your baby, Eden, and you did amazing things - not just for me and mine, but for the whole idea of crowd funding. You have shown that people do care and can make a difference one person at a time. All they need is direction and focus - the compassion and generosity is already there.
Deletexoxox
max
I'm glad to hear that Joshua is kicking cancer's ass, Max! My thoughts and prayers go out to your family, my friend. I look forward to the day we get to see pics of Joshua walking the stage to accept his degree.
ReplyDeleteTake care and God bless,
Rob
Thanks for all you've done, Sharky.
Delete*Big man-hug*
max
Hi Max
ReplyDeleteI meant to comment the other day and got side tracked.
Just wanted to stop by and give some hugs and to let you know even though the fundraiser is over, we are still here for you.
Thanks. That means a lot. ;)
Delete